Disabled Community

Proud of myself for once

Dying now but I beat my own personal best for time on a static bike without a break, 20 minutes doesn't seem like a lot but when you're bed bound for most of your life 20 minutes is ages

🫠

Anyone else's brain melt when there's too much to do and you can't figure out where to start

Today was supposed to be a fun day

Instead of being fun and going out for a huge craft event in Birmingham my body decided no lets just increase all your symptoms and make you wake up mid sleep to vomit so you feel too frail to do anything 🥲 i just want to have a life, maybe make a friend and yet im doomed to being stuck inside… read more

Silly

Searching for ways to avoid the solo traveler tax while also not having to do a bunch of research into if the hotel is accessible and the main piece of advice ive seen is "find a travel buddy " dude if i had that choice do you really think id rather pay double to go solo and do less because im… (edited) read more

hot and tired

this heat makes me feel more ill ughh. CFS/ME and Orthostatic intolerance . (edited)

It would be nice

To just get one night of good sleep, no nightmares, no dreams better than real life, no joint dislocations, no nerve pain, no sciatica, no waking up every hour or needing to rotate every few minutes, no muscle Spasms or restless legs, nothing but a few good rem cycles and wake up feeling less tired… read more

I am here

I'm having a rough morning but at least I'm awake and here

Is it even treatment day if i don't take multiple terrible selfies with the canula on show

There's my fun for the month over (literally, i really need a life outside of a hospital) 😂

Frustrated

Its so annoying that things completely out of my control ruin so much of the things i feel make life worth living 😫 i would just like for one aspect of my life to be unaffected by disability but life just isn't that fair i guess, it has significantly impacted so many things that others just don't… read more

Dead

Today's physio freaking killed me, did almost 40 mins (in 10 min spurts) on the legs/arm bike which is so much more than im used to so now im very very dead, my whole body kills, and I don't have anything that would help with the pain 🥲 im hoping at least my migraine meds kick in before my head… read more

New treatment

Not looking forward to monthly infusions but at least this option lowers my chance of back to back infections

.

Even when im trying to look cute, i can't get rid of how tired I look

Anyone up for a language exchange?

I'm a Spanish and Galician native speaker who is fluent in English and competent in French, Portuguese and Catalan. I would love to improve those aforementioned languages, as well as initiating myself with Hindi. Plus, it would be a nice opportunity to weave mutual support and foster connections… (edited) read more

The guilt is real

#chronicillness #disabled

selfie tuesday?

and you’d never even know how much pain i was in. #disability #disabled #chronicillness

Ugh

I hate being so tired when I only do basic stuff. I hate chronic pain so much. Seems like everyday is a up hill battle and it's not getting easier.

Facing Reality

Facing the reality of being disabled is hard. I have been gaslighting myself for so long telling myself that the doctors were right and that the pain is all in my head. That I just needed to work harder and one day it will pay off and make the pain go away. They were wrong. I face the harrowing… read more

of course i have a flare up the moment i run low on meds. of course.

Disability surgery update

So in my bio, I mentioned that I am getting a surgery to hopefully fix my disability. Well, I recently got that surgery and I’d like to post a progress picture. I’m happy to report that it’s going great!😁

Ha. Oh no

Just found out I have basically every symptom I've been given of POTS SYNDROME ... but I'm super happy I have a support system that's already figured out how to help 🙂 (edited)

Do you accept disabled guy ?

Therapy 😋😋

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