Umphakathi we-Disabled

Ngiyaziqhenya ngami okokuqala

Ngiyafa manje kodwa ngiphumelele isikhathi sami esingcono kakhulu sokusebenza ebhakedeni elingashintshi, imizuzu engama-20 ayibonakali njengokuningi kodwa uma uhleli embhedeni isikhathi eside empilweni yakho imizuzu engama-20 yinde

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Ingabe ubuchopho babanye bujola uma kukhona okuningi okufanele kwenziwe futhi ungazi ukuthi uqale kuphi

Namuhla bekufanele kube usuku olujabulisayo

Esikhundleni sokuba kujabulise futhi ngiphume emcimbini omkhulu wezobuciko eBirmingham, umzimba wami wanquma ukuthi cha, ake sikhulise zonke izimpawu zakho futhi sikwenze uvuke phakathi kokulala ukuze uphume, ukuze uzizwe ungenamandla ukwenza noma yini 🥲 ngifuna nje ukuba nempilo, mhlawumbe ngenze…funda kabanzi

Uhlanya

Ukufuna izindlela zokugwema intela yomtraveli oyedwa ngenkathi ungafuni ukwenza ucwaningo oluningi lokuthi ihhotela iyatholakala yini futhi ingxenye enkulu yokwelulekwa engiyibonile ithi "thola umngane wokuhamba" mfowethu uma ngabe nginokhetho lokuthi ngabe ucabanga ukuthi ngizokhokha kabili ukuze…( kulungiswe )funda kabanzi

ushisa futhi ukhathele

le m heat ingenza ngizizwe ngigula kakhulu ughh. CFS/ME kanye ne-Orthostatic intolerance.( kulungiswe )

Kuzoba kuhle

Ukuthi ngithole ubusuku obunye bokulala kahle, akukho amaphupho amabi, akukho amaphupho angcono kunempilo yangempela, akukho ukuhamba kwemithambo, akukho ubuhlungu bezinzwa, akukho i-sciatica, akukho ukuvuka njalo ngehora noma ukuhamba njalo emizuzwini embalwa, akukho ukuvuvukala kwemisipha noma…funda kabanzi

Ngikhona

Nginephutha ekuseni kodwa okungenani ngivukile futhi ngikhona

Ingabe usuku lokwelashwa uma ngingathathi izithombe ezimbi eziningi nge-canula ibonakala

Kukhona ukujabula kwami kwenyanga kuphelile (ngempela, ngidinga impilo ngaphandle kwesibhedlela) 😂

Uhlupheko

Kuyadabukisa ukuthi izinto ezingekho ngaphansi kokulawula kwami zibhubhisa izinto eziningi engizizwa zenza impilo ibe nentshisekelo 😫 ngithanda nje ukuthi enye ingxenye yempilo yami ingathintwa yikhono lokungasebenzi kodwa impilo ayinakho lokho okulinganayo ngicabanga, ithinte kakhulu izinto…funda kabanzi

File

Uphiko lwezempilo lwanamuhla lungishaye kakhulu, ngenze cishe imizuzu engama-40 (ngemizuzu eyi-10) emshinini wezinyawo/izandla okungaphezu kwalokho engijwayele, ngakho manje ngife kakhulu, umzimba wami wonke ubuhlungu, futhi anginakho okungasiza ngalesi sifo 🥲 ngithemba okungenani imishanguzo yami…funda kabanzi

Ukwelashwa okusha

Angijabule ngenyanga yokufaka kodwa okungenani le ndlela yehlisa ithuba lami lokuba nezifo ezihambisanayo

Ngubani ofuna ukushintshanisa ulimi?

Ngiyisikhulumi sokuqala seSpanish neGalician esikhuluma kahle ngesiNgisi futhi ngiyakwazi kahle isiFulentshi, isiPhothukali nesiCatalan. Ngithanda ukuthuthukisa lezi zimi ezishiwo ngenhla, kanye nokuzifaka kwiHindi. Futhi, kuzoba ithuba elihle lokuhlanganisa ukwesekwa komunye nomunye nokwakha…( kulungiswe )funda kabanzi

Ubugebengu buyiqiniso

#chronicillness #disabled

selfie uLwesibili?

futhi ungakaze wazi ukuthi ngabe ngibuhlungu kangakanani. #disability #disabled #chronicillness

Ugh

Ngiyazonda ukuba nokukhathala kakhulu lapho ngenza izinto ezilula kuphela. Ngiyazonda ubuhlungu obungapheli kakhulu. Kubonakala sengathi usuku nosuku kuyimpi ethusayo futhi akuphumi kalula.

Ubhekene Neqiniso

Ubhekene neqiniso lokuba nekhono lokungasebenzi kahle kunzima. Ngizithukuthelela isikhathi eside ngizitshela ukuthi odokotela babenelungelo futhi ukuthi ubuhlungu bukhona kuphela engqondweni yami. Ngicabanga ukuthi bekufanele ngisebenze kanzima futhi ngosuku oluthile kuzokhokha futhi kubangele…funda kabanzi

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Noma ngizama ukubukeka kahle, angikwazi ukususa ukuthi ngibukeka kanjani kahle.

ngokuqinisekile nginokuphakama kwesimo lapho ngiqala ukuncipha emithini. ngokuqinisekile.

Uphenyo lwezokwelapha lwezokukhubazeka

Ngakho-ke ebhayibhelini lami, ngikhulume ukuthi ngithola ukuhlinzwa ukuze ngithemba ukuthi ngizokwazi ukulungisa ukukhubazeka kwami. Kulungile, ngisanda kuthola lokho ukuhlinzwa futhi ngithanda ukufaka isithombe sokuthuthuka. Ngijabule ukukwazisa ukuthi kuhamba kahle!😁

Hayi. O, cha

Ngithole ukuthi nginazo zonke izimpawu engizitholile ze-POTS SYNDROME ... kodwa ngijabule kakhulu ukuthi nginokwesekwa okukhona okukhona okwaziwa ukuthi kuzongisiza 🙂( kulungiswe )

Uyawamukela yini umuntu ophukile?

Ukwelashwa 😋😋

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