Multiplesclerosis Community

Hospital again

Unusually I dress nice for my obligatory monthly infusion selfie but today I feel horrible so im definitely looking more of a mess than i typically do, got a heat pack in my pouch and another on my back, my hair is a mess and my joggers have paint stains that I didn't notice until after I had... read more

Me: Then, Now, in Continuum

The collage of my journey with MS over the years (about 6 years here), with the numerous pits and dips, and eventual lifts and loss of control of the ground walked on. It's exhausting having to both motivate myself to get up and keep going, all the while also feeling like I have to be the strong... (edited) read more

Feeling trapped

My disability makes it very difficult to travel, I can't drive and im in too much pain to reliably take public transport over longer distances regularly but im so bored of being stuck isolated in my flat. Idk what to do, there's nothing in my town to do, there's very few social groups and even most... read more

Odd

Every time I need to sneeze I feel like im going to projectile vom and there's not much anyone can do about it but i just thought its kinda crazy how a body can mess up on those signals 😅

I start my third treatment tomorrow

Im a little worried as the one im on is at least reducing the amount of relapses but im getting so many infections i may as well not be on anything at all because im still getting a significant increase in severity of symptoms and baseline pain/fatigue ect, and we can't currently tell if i also am... read more

Once upon a time I could back flip, climb rock walls and silk ropes without effort now I am stuck in my bed

So I did physio in rehab and now I'm feeling so down, comparing my life to before the pain became too much to cope with and how active i was to now barely being able to complete 5 basic stability exercises and a few minutes on a bike that does the work for you half the time is so depressing, I just... read more