Multiplesclerosis Community

Today has killed me

Barely did anything i actually wanted to bc i was too fatigued to focus after my physio appointment

Hospital again

Unusually I dress nice for my obligatory monthly infusion selfie but today I feel horrible so im definitely looking more of a mess than i typically do, got a heat pack in my pouch and another on my back, my hair is a mess and my joggers have paint stains that I didn't notice until after I had… read more

Feeling trapped

My disability makes it very difficult to travel, I can't drive and im in too much pain to reliably take public transport over longer distances regularly but im so bored of being stuck isolated in my flat. Idk what to do, there's nothing in my town to do, there's very few social groups and even most… read more

The flu...

I've been sick since Friday last week, and it's still going. I was concerned it might be COVID, but I tested negative. So it's probably a very severe case of the flu, which is extra dangerous in combination with my MS... I've been feeling quite alone, and I was let down by some people close to me… (edited) read more

Still sick.

#chronicillness #depression #multiplesclerosis #cfs #neurological #health #tired #selfacceptance #selfcare #communicatingdirectly #boundaries #values #respect #selfcare #mentalawareness #mentalhealth #relationshipadvice #awareness #mindful (edited)

There's virtue in rest.

#chronicillness #depression #multiplesclerosis #cfs #neurological #health #tired #selfacceptance #selfcare #communicatingdirectly #boundaries #values #respect #selfcare #mentalawareness #mentalhealth #relationshipadvice #awareness #mindful

Common misconception.

#chronicillness #depression #multiplesclerosis #cfs #neurological #health #tired #selfacceptance #selfcare #communicatingdirectly #boundaries #values #respect #selfcare #mentalawareness #mentalhealth #relationshipadvice #awareness #alone #cfs (edited)

The constant vigilance and adapting which is needed is exhausting...

#chronicillness #chronicfatigue #multiplesclerosis #autoimmune #illness #disability #invisibledisability #understanding #empathy #depression #cfs #neurological #health #tired #selfacceptance #selfcare #communicatingdirectly #boundaries #values #respect #selfcare #mentalawareness #mentalhealth… (edited) read more

Mood.

#chronicillness #depression #multiplesclerosis #cfs #neurological #health #tired #selfacceptance #mindful #nightowl #memes #mood #leavemealone (edited)

How it is!

#chronicillness #chronicfatigue #multiplesclerosis #autoimmune #illness #disability #invisibledisability #understanding #empathy #depression #cfs #neurological #health #tired #selfacceptance #selfcare #communicatingdirectly #boundaries #values #respect #selfcare #mentalawareness #mentalhealth… (edited) read more

invisible illness

#chronicillness #chronicfatigue #multiplesclerosis #autoimmune #illness #disability #invisibledisability #understanding #empathy #depression #cfs #neurological #health #tired #selfacceptance #selfcare #communicatingdirectly #boundaries #values #respect #selfcare #mentalawareness #mentalhealth… (edited) read more

😂💀

Proud of myself

This week's physio went a lot better, im still in a lot of pain but we did manageable exercises and increased the amount of them we do, also spent a good 3 minute longer on the stationary bike and added 5 mins arm pedalling which doesn't sound like a lot but trust me its such a big deal for me,… read more

Physio won't listen

I keep trying to explain that im in too much pain just by doing the physio they've given me that I physically cannot do anything else when im not there, that im bed bound and they keep replying with" just do a little at a time" or "staying in bed makes the pain worse", even though Ive lived with… read more

Rehab

Second week of ms rehabilitation, first week of them actually pushing me, not looking forward to the pain that comes with it honestly but this is my last hope to actually regain any sense of a decent quality of life

Once upon a time I could back flip, climb rock walls and silk ropes without effort now I am stuck in my bed

So I did physio in rehab and now I'm feeling so down, comparing my life to before the pain became too much to cope with and how active i was to now barely being able to complete 5 basic stability exercises and a few minutes on a bike that does the work for you half the time is so depressing, I just… read more

The rules always change.

#multiplesclerosis #chronicillness #cfs #awareness

There is no cure. It is unpredictable. It varies from person to person. It is chronic illness.

#multiplesclerosis #chronicillness #awareness

Ugh...

Oh, great... My leg is currently experiencing spasticity and tingling... I really hope that it's just because I'm tired and not because a relapse is starting... (And man... I need to post more positive things lol)

Better!

Oh, man! Finally got my monthly infusion! I feel so much better now! I'm sleepy, but I feel a ton better now! 😄

Still get these all the time.

#multiplesclerosis #chronicillness #tired #cfs #awareness

What is MS?

MS is a chronic neurological autoimmune disease. Chronic means that there's no cure for it and its effects often reach all aspects of life. It's different for everyone, as is everything, but don't invalidate someone's illness just because it's invisible. 🦋 #chronicillness #chronicfatigue… (edited) read more

I start my third treatment tomorrow

Im a little worried as the one im on is at least reducing the amount of relapses but im getting so many infections i may as well not be on anything at all because im still getting a significant increase in severity of symptoms and baseline pain/fatigue ect, and we can't currently tell if i also am… read more

Odd

Every time I need to sneeze I feel like im going to projectile vom and there's not much anyone can do about it but i just thought its kinda crazy how a body can mess up on those signals 😅

😭💀

#multiplesclerosis #chronicillness

False Alarm

Okay! I'm alright! In regards to my previous post, it seems like I was having pain and tingling due to being exhausted. I'd had a rough day the day before and was really tired... More tired than I thought I was... So I'm good now!😁

💉

Is it even a hospital visit without a mirror selfie with the canula in my arm in full view 😂

The damage MS does...

MS Awareness

https://youtu.be/W5yd6_lO3Zg This is the video of MS Awarenesses that I make with my best friend

Ms in Greek summer heat

It's 40 degrees out but I've also managed to only faint once so 🎉. Not looking forward to three months of numbness tbh

Do you know Multiple Sclerosis a.k.a Snowflake?

I am