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Universes
Posted Monday, March 27, 2023
2y
INTP
Aquarius
I hate how these illnesses steal my life away from me. I want to be happy and energetic like other people. I want to be able to do things like they do, have a sense of purpose and feel like I'm accomplishing things.
2
9
Comment
The chronicillness community, chat, and discussion.
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381 SOULS
Jaws
2y
INTJ
Taurus
1
0
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#chronicillness
1mo
INTJ
Taurus
Crippling pain from just physio assessment but atleast seems i have done something right keeping up stretching and light excersice to keep any bit of movement in my body even trough pains💪So lets watch got for the hundreth time👏🌞🌞🌞🐺🦁
13
7
#chronicillness
9mo
INFP
Leo
10
5
#chronicillness
10mo
INFP
Leo
It is important to raise awareness for dysautonomia as it is critical to funding research and helping people who struggle with it
11
4
#chronicillness
9mo
INFP
Leo
10
3
#chronicillness
2y
ENFP
Cancer
hi! although im undiagnosed but i keep hving fainting spells and smtgh that's close to seizure but when i showed doctors they said its not really a seizure but from my body language they could also tell im not faking it....did several test all was normal tho ....tried spiritual healing and all said... read more
2
4
#chronicillness
6mo
ISFJ
Libra
I needed it for my kidneys. My lupus was taking them over, but I am now in remission and was able to stop the steroids! This transformation was all my metabolism and cutting most sugar out of my every day diet. I can't exercise very much because my legs don't work well. I still walk with a cane... read more
10
4
#chronicillness
1mo
INFJ
Capricorn
I got a bloody test done. I tested weak positive for lupus. So might have lupus. Still need to get tested for pots. I also got a steroid back injection. So far thats not helping my pain levels. But I have slightly more energy. I also went to the er and the er doctor was shocked that they never... read more
7
9
#chronicillness
2y
ISFP
Taurus
my chronic illness means I can't go outside a lot, and I'm in desparate need of friends so I don't feel quite so lonely anymore.
9
4
#chronicillness
7mo
INFP
Taurus
tmw you know someone really likes you because they bring you sharps containers without even having to ask 🤭
8
2
#chronicillness
2y
INFJ
Capricorn
When people say chronically online but don't understand that you've loss your social life because of chronic illness so you only talk to people online now since irl is physically difficult
6
0
#chronicillness
6mo
INFP
6
3
#chronicillness
2mo
INTJ
Taurus
I hate and am used to it already,but still feel bitter at flare up days,heres to others alike and for awareness its not a blessing its a curse🍻
7
2
#chronicillness
2mo
INFJ
Capricorn
I had a blood test done for lupus and it came out weak positive ill find out more when I see my rheumatologist next (edited)
8
0
#multiplesclerosis
8mo
INTJ
#multiplesclerosis #chronicillness #awareness
7
1
#multiplesclerosis
8mo
INTJ
#multiplesclerosis #chronicillness #tired #cfs #awareness
5
5
#chronicillness
8mo
INTJ
#multiplesclerosis #chronicillness #cfs #awareness
7
4
#chronicillness
5mo
ESFJ
Taurus
1 Award
7
1
#relationshipadvice
8mo
INFP
Libra
I had some new to day that left me feeling a little shocked and disgusted. My previous ex-girlfriend literally is in a new relationship, while this doesn't bother me in the slightest it's the following that does:- •During my time with her she kept letting her ex husband and eldest daughter who... (edited) read more
5
12
#chronicillness
5mo
ISFJ
Libra
Do any of my girlies suffer from ovarian cysts? Any tips to manage the pain would be appreciated!! This is my first one. (edited)
4
7
#chronicillness
6mo
INFP
7
0
#chronicillness
8mo
INTP
Aquarius
1 Award
Going to hospitals, doctors appointments, and specialists, seeking answers while everyone else lives there lives normally, is a different kind of loneliness... 💔
7
10
#chronicillness
8mo
ESFJ
Taurus
5
1
#chronicillness
2mo
INFJ
Capricorn
So I was finally about to see a rheumatologist and maybe eventually get some answers. My legs always hurt like hell at night so he asked me to take pictures of them when they flare up. I have no idea what this is caused by but this happens nightly at this point
3
4
#chronicillness
6mo
ISFJ
Libra
How many pills/medical doses do you have to take every day? Without being too specific, I have to take 10 pills every day. That includes my morning and night dose. Some are doubled (2 capsules per day) and one of them i have to have 4 capsules of each day. Just curious because I feel like it's A... read more
5
1
#chronicillness
2mo
ESFJ
Taurus
4
4
#chronicillness
2mo
INTP
Aries
4
2
#chronicillness
3mo
ISFJ
Libra
Sometimes lupus looks like this. A rash that can't be explained. A raised, red/purple, moving and changing by the hour rash. Dermatologists took 2 biopsies from that rash (on my other arm) because they thought it was fungal due to the ring shape the rash made. It was not. Lupus is in my skin.... read more
7
2
#chronicillness
6mo
ISFJ
Libra
I'm trying to build up this topic so more people with chronic illness can find some sense of community. If you or anyone you know need some like-minded people to talk to about their chronic illness, please use this topic!
9
2
#chronicillness
6mo
INFP
Diagnosed with: POTS, (postural orthostatic tachycardia syndrome), Fibromyalgia, Arthritis, IBS, Chronic Migraines, Asthma, CFS, & Epilepsy. I can't manage most of them because a lot of medications interact with other medications or interact badly with other illnesses. I'm not on disability... read more
4
3
#chronicillness
5mo
INFP
Leo
4
0
#chronicillness
8mo
INFP
8
1
#chronicillness
5mo
ENTP
Aries
1 Award
3
1
#multiplesclerosis
8mo
INTJ
#multiplesclerosis #chronicillness
3
2
#chronicillness
8mo
INTP
Aries
3
0
#chronicillness
4mo
ISFJ
Libra
It likes to pop up and remind me I'm chronically ill 🤒 (I'm referring to the redness across my cheeks and nose jic you don't know) Sorry, I don't feel flustered or in love.... I just have a permanent blush 🫠🙃
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